Program Coordinator for Rare Cancer Org

The Program Coordinator will engage with patients and volunteers to fulfill the mission of this small, passionate organization to support those affected with pheochromocytoma and paraganglioma, a rare neuroendocrine cancer. The Program Coordinator reports to the Executive Director and works with dozens of dedicated volunteers to move the Pheo Para Alliance mission forward.

Responsibilities

• Patient Education – Support creation and management of education and awareness programs such as webinars, regional and national conferences, Awareness Week and printed and online materials.
• Event Support - Provide in-person event support for events such as a National Conference, Gala and other grassroots educational, peer support and fundraising events.
• Committee Support – manage committee communications, create meeting minutes, empower volunteer leadership, schedule meetings, send out correspondence, etc.
• Peer Support – manage 1:1 and online monthly peer support programs, manage peer support volunteers, events and administration.
• Marketing & Social Media – Create graphics, update website, post on social media, and send mass emails. Manage annual social media campaigns including Pheo Para Phenom Awards, Awareness Week & NET Cancer Day.
• Legislative Advocacy – Manage legislative advocacy efforts to represent the patient voice.
• Other responsibilities as required.