ONG (Setor Social)
The Marfan Foundation
Sobre Nós
The Marfan Foundation creates a brighter future for everyone affected by Marfan syndrome and related disorders.
- We pursue the most innovative research and make sure that it receives proper funding.
- We create an informed public and educated patient community to increase early diagnosis and ensure life-saving treatment.
- We provide relentless support to families, caregivers, and healthcare providers.
We will not rest until we’ve achieved victory—a world in which everyone with Marfan syndrome or a related disorder receives a proper diagnosis, gets the necessary treatment, and lives a long and full life.
The Marfan Foundation creates a brighter future for everyone affected by Marfan syndrome and related disorders.
- We pursue the most innovative research and make sure that it receives proper funding.
- We create an informed public and educated patient community to increase early diagnosis and ensure life-saving treatment.
- We provide relentless support to families, caregivers, and healthcare providers.
We will not rest until we’ve achieved victory—a world in which everyone with Marfan syndrome or a related disorder receives a proper diagnosis, gets the necessary treatment, and lives a long and full life.
Áreas Temáticas incluem
- Saúde & Medicina
Localização
- 22 Manhasset Avenue, Port Washington, NY 11050, United States
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