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Nonprofit

The Marfan Foundation

Port Washington, NY
|
www.marfan.org

    • About Us

    The Marfan Foundation creates a brighter future for everyone affected by Marfan syndrome and related disorders.
    • We pursue the most innovative research and make sure that it receives proper funding.
    • We create an informed public and educated patient community to increase early diagnosis and ensure life-saving treatment.
    • We provide relentless support to families, caregivers, and healthcare providers.

    We will not rest until we’ve achieved victory—a world in which everyone with Marfan syndrome or a related disorder receives a proper diagnosis, gets the necessary treatment, and lives a long and full life.

    The Marfan Foundation creates a brighter future for everyone affected by Marfan syndrome and related disorders.
    • We pursue the most innovative research and make sure that it receives proper funding.
    • We create an informed public and educated patient community to increase early diagnosis and ensure life-saving treatment.
    • We provide relentless support to families, caregivers, and healthcare providers.

    We will not rest until we’ve achieved victory—a world in which everyone with Marfan syndrome or a related disorder receives a proper diagnosis, gets the necessary treatment, and lives a long and full life.

    Issue Areas Include

    • Health & Medicine

    Location

    • 22 Manhasset Avenue, Port Washington, NY 11050, United States
    Illustration

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