Director or Manager, Development (Fundraising)

Position Overview

NTSAD’s Manager of Development is responsible for the fundraising efforts of the organization. This role reports to the Chief Executive Officer, and collaboratively interacts with NTSAD’s major donors, staff, Board of Directors, committee members, and members of the rare disease community. The Manager’s primary responsibility is oversight of all fundraising operations to meet or exceed the organization’s annual revenue budget while adhering to the expense budget. Paramount to this position is striving to identify and secure new revenue sources while expanding existing sources to meet or exceed goals. The Manager of Development works cross-functionally with other staff members to align fundraising efforts with organizational objectives. To articulate the need for organizational support, the Manager of Development stays apprised of all current NTSAD research projects, advocacy initiatives, and family services programs and activities.

Ideal candidates should demonstrate proven fundraising success in a variety of roles in both large and small not-for-profit organizations and be ready to drive the process with innovation, enthusiasm, and initiative.

The Manager of Development position is a full-time, exempt position based in our Boston office.

Responsibilities

• Fundraising - exceed the organization’s annual revenue budget of $1,000,000+ through grant writing, major gifts, event sponsorships, Annual Fund, restricted funds, special campaigns, and planned gifts/bequests.
• Update and implement the organization's Development Plan to complement its strategic plan and annual fundraising budget, with the intent to increase revenue goals by 10% or more annually.
• Continuously and proactively identify and secure new sources of revenue through prospect research and identification (individual donors, companies, foundations, etc.), while engaging and expanding opportunities for existing donors through cultivation of strong, positive relationships across the NTSAD Community.
• Develop and implement a major gift plan, including initiating and cultivating relationships with prospects/donors, researching, and recommending gift level, deploying solicitation strategies, and managing successfully executed solicitations.
• Manage donor database, including input, financial analysis, and reporting.
• Provide support and resources for individuals and families who conduct third-party fundraisers for Day of Hope, Rare Disease Month/Day, or other initiatives.
• Collaborate with staff to create NTSAD’s annual Impact Report.
• Manage the planning and full execution for the annual fundraising event and additional fundraising campaigns or events, including sponsorships, marketing and communications, volunteer management, and onsite fundraising.
• Provide Administrative Assistant with support and guidance related to processing donations, producing acknowledgement letters, updating the donor database and website, and assisting with special events and volunteer engagement.
• Serve as the staff liaison to the Development Committee and ad hoc event committee.
• Submit written progress reports summarizing development activities for all Board meetings and participate in Board meetings, upon request.
• Periodically conduct a comprehensive evaluation of development initiatives’ success against established goals with recommendations for adjustments if needed.

Key Skills

• Proven, successful fundraiser.
• Driven and with strong initiative to reach/exceed fundraising goals.
• Success implementing advanced planning strategies to meet internal and external deadlines.
• Steward and cultivate existing donors and identify new ones.
• Success working independently or cross-functionally with other team members, Board, and committee members.
• Success fundraising through variety of channels including Annual Fund, Major Gifts and Grants.
• Efficiently manage multiple projects with competing priorities.
• Exemplary organizational and people skills.
• Strong, persuasive verbal and written communication skills.
• Provides high-quality deliverables consistently and on time.
• Thrives in a fast-paced, dynamic environment.
• Ability to recruit and manage volunteer committee members.
• Familiarity with the rare disease philanthropic ecosystem preferred.
• Proficient in Microsoft Office Suite and Donor Perfect.