Executive Director

Band of Parents (BOP) is a grassroots member-based organization (mostly parents of children with neuroblastoma) who are passionate about finding a cure for this rare and aggressive pediatric cancer. Our mission is to seek projects that have been examined in the lab, and with assistance and funding, can be moved into a clinical environment and patient population within 12-24 months of funding, so children can be saved and made healthier as fast as possible. BOP’s goal is to fund less toxic, more effective treatments to increase the survival rate of children battling this horrible disease. BOP is also a support group for the newly diagnosed and their families as they navigate their treatment journeys.

Since 2007, we have pledged more than $14 million dollars for neuroblastoma research and thanks to research we have funded, the clinical landscape has profoundly changed. BOP is the largest private funder of neuroblastoma research at Memorial Sloan Kettering Cancer Center (MSKCC). We have funded two lifesaving treatments that are now front-line protocol at MSKCC: Hu3F8 (humanized antibody) and the neuroblastoma vaccine. Our funding and support of Hu3F8 and vaccine has helped push survival rates to above 50%. Hu3F8 was recently approved by the FDA, which will allow for wider distribution, resulting in many more lives being saved. We fund the most promising clinical trials at major cancer centers worldwide, including MSKCC, Children's Hospital of Los Angeles, Children's Hospital of Philadelphia, Dana-Farber Cancer Institute and hospitals in Europe.

The Executive Director (ED) for Band of Parents represents the organization, its values and mission at the highest levels. The ED will lead BOP and run the day-to-day operations of the organization. The ED will work closely with our members, donors, sponsors and partners to lead BOP’s fundraising events, including the annual events: Play Like a Pro hockey game, Golf Tournament and Kids Walk for Kids with Cancer. The ED will also manage digital marketing fundraising campaigns and will work with the BOP Board of Directors in strategic planning to continue growing the organization.

The ED is a home-based position, but meeting spaces/conference rooms are available as needed at NYC area businesses. There will be a limited amount of travel, as well as meetings to attend in the New York area. It is highly desirable that candidates be based in the New York City area.

The ED will report to the Board Chair. Ideal candidates will possess at least five or more years of fundraising and/or sales/event management experience, possibly in a health or human services non-profit organization, but potentially a career-changer from the for-profit sector.

The ED will manage a part-time Development Director and part-time Accountant.

This is a full-time, salaried position with benefits that include: 401K contribution, basic AD&D and life insurance and health insurance (if required). Annual compensation will include a bonus based upon overall performance. The bonus will be at the discretion of the Board of Directors.