Executive Director- Part-time Remote

The Executive Director is the key management leader of AXYS. The Executive Director is responsible for leading the fundraising, donor relations, marketing, and community outreach efforts of the organization while overseeing its administration, programs, projects, and strategic plan. The position reports directly to the Board of Directors and follows policies and procedures as the Board states.

General Responsibilities

1. Board Governance: Works with the board to fulfill the organization’s mission
   • Responsible for leading AXYS in a manner that supports and guides the organization’s mission as defined by the Board of Directors
   • Responsible for communicating effectively with the Board and providing, in a timely and accurate manner, all information necessary for the Board to function properly and make informed decisions
   • Responsible for bringing changes in policies, procedures, strategic plans, communication strategies, fundraising plans, major budget shifts, etc. to the board for approval
2. Financial Performance and Growth: Develops resources sufficient to ensure the financial health of the organization
   • Take primary responsibility for the financial development of the organization including overseeing and coordinating fundraising activities, identifying and applying for grants, analyzing data from previous campaigns to improve future campaigns, donor relations to support the AXYS mission.
   • Oversee the financial integrity of AXYS, and, in collaboration with the board treasurer, submit to the Board a proposed annual budget and monthly financial statements which accurately reflect the financial condition of the organization.
   • Operate within the approved budget and maintaining the organization in a positive financial position
   • Identify, organize, coordinate, and contribute to applications for various grant opportunities
3. Mission and Strategy: Works with board and staff to ensure that the mission is fulfilled through programs, strategic planning, and community involvement
   • Develop and implement programs that carry out the organization’s mission and strategic plans
   • Enhance the organizations image by being active and visible in the X and Y Chromosome Variation community and by working closely with other professional, civic, and private organizations
   • Establish and maintain relationships with various organizations throughout the country and utilize those relationships to strategically enhance the AXYS mission
   • Work closely with the Board of Directors to seek their involvement in policy decisions, fundraising, and to increase the overall visibility
   • Work closely with the AXYS Clinic and Research Consortium
   • Communicate regularly with stakeholders to provide support and guidance through social media, personal communication, newsletters, and other means
4. Operations: Oversees and utilizes existing resources to ensure that the organization implements its programs and projects
   • Hire, supervise, and retain competent and qualified staff and volunteers
   • Review and sign all notes, contracts, agreements, and other instruments
   • Works with the board in the planning and operations of an annual budget
   • Keep current all required registrations and certifications for compliance with state and federal regulations
   • Establish employment and administrative policies and procedures for all functions
   • Organize and oversee the implementation of a strategic plan
   • Coordinate Board and committee meetings
   • Oversee marketing and other communications efforts
   • Other duties as assigned by the Board of Directors