Dysautonomia Support Network

Dysautonomia Support Network’s Mission is to provide a Community that Empowers and Supports those impacted by dysautonomia to live their best lives.

Being diagnosed and living with dysautonomia can be a life-altering event. Individuals living with dysautonomia – and their loved ones – often require a variety of resources and support. DSN is a group of committed volunteers who are passionate about serving people with dysautonomia because we have been impacted by dysautonomia - as patients, family members, friends, or healthcare providers. 

DSN was founded by an individual who is a dysautonomia patient, caregiver, and medical professional. Seeking information and community with others who have a shared experience, she organized an initial meeting with a small group of individuals living with dysautonomia. What began as an informal meeting in a coffee shop has grown into a thriving 50,000+ member-strong non-profit organization focused on bringing support, community, and hope to people around the world who are impacted by dysautonomia. 

Dysautonomia Support Network works to support and empower those with dysautonomia through education, resources, and community.