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Niemann-Pick Disease Group (UK)

East Wemyss, FIF, United Kingdom
|
www.nnpdf.org/npdg-uk

    • About Us

    The Niemann-Pick Disease Group (UK)is an international, self-help support group which was granted charitable status in 1997. The Group aims to support families of children and young people affected by all types of Niemann-Pick Disease. Through the Group we aim to

    • give and receive emotional support
    • provide assistance through a crisis
    • share resources and ideas about such issues as doctors, clinics, benefits and education
    • provide each other with practical suggestions relating to the day to day care of our children
    • establish enduring relationships with others who, on a personal level, understand the anguish the joys and the recovery of being a parent of a child with a life-limiting condition. If you would like more information please contact us, we are here to help.

    The Niemann-Pick Disease Group (UK)is an international, self-help support group which was granted charitable status in 1997. The Group aims to support families of children and young people affected by all types of Niemann-Pick Disease. Through the Group we aim to

    • give and receive emotional support
    • provide assistance through a crisis
    • share resources and ideas about such issues as doctors, clinics, benefits and education
    • provide each other with practical suggestions relating to the day to day care of our children
    • establish enduring relationships with others who, on a personal level, understand the anguish the joys and the recovery of being a parent of a child with a life-limiting condition. If you would like more information please contact us, we are here to help.

    Issue Areas Include

    • Children & Youth
    • Family
    • Health & Medicine

    Location

    • Kingslaw House, East Wemyss, FIF KY1 4RS, United Kingdom
      East Brae
    Illustration

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