Nonprofit
Registry Data Manager
Details
Description
This is an exciting opportunity for a Data Manager to join the internationally recognised UK Cystic Fibrosis Registry team. The UK Cystic Fibrosis Registry is a database of consenting people with cystic fibrosis across the UK collecting demographic, clinical care, and health outcomes data from clinical teams in specialist centres. The Registry is a world-leading resource, the data from which is used to facilitate research, clinical trials, real-world evidence studies and quality improvement projects for the benefit of people with cystic fibrosis. In this new role, you will be responsible for the management and curation of the UK CF Registry’s longitudinal data sets used in support of these work programmes.
You can find out more about what we do here www.cysticfibrosis.org.uk/the-work-we-do/uk-cf-registry
As the right candidate, you will:
- Have demonstrable experience of working with large observational data sets
- Support the Registry with efficient data management and reporting processes
- Have a passion for working with healthcare data and the use of data to improve health outcomes
- Have excellent communication skills so you can present your work clearly and appropriately for a wide range of audiences
- Be able to deliver to agreed timelines and work with colleagues and stakeholders both nationally and internationally
- Be passionate about supporting the Cystic Fibrosis Trust and uniting with us to make sure that everyone can live without the limits of cystic fibrosis
This is an exciting opportunity for a Data Manager to join the internationally recognised UK Cystic Fibrosis Registry team. The UK Cystic Fibrosis Registry is a database of consenting people with cystic fibrosis across the UK collecting demographic, clinical care, and health outcomes data from clinical teams in specialist centres. The Registry is a world-leading resource, the data from which is used to facilitate research, clinical trials, real-world evidence studies and quality improvement projects for the benefit of people with cystic fibrosis. In this new role, you will be responsible for the management and curation of the UK CF Registry’s longitudinal data sets used in support of these work programmes.
You can find out more about what we do here www.cysticfibrosis.org.uk/the-work-we-do/uk-cf-registry
As the right candidate, you will:
- Have demonstrable experience of working with large observational data sets
- Support the Registry with…
Benefits
This role can be either home based or London office based, and we offer a range of benefits including flexible working, 30 days annual leave plus bank holidays, opportunities for learning and development, pension, healthcare cash plan and more.
This role can be either home based or London office based, and we offer a range of benefits including flexible working, 30 days annual leave plus bank holidays, opportunities for learning and development, pension, healthcare cash plan and more.
Location
Associated Location
Second Floor
How to Apply
Closing date for completed applications is 9am on Monday 20 January.
Interviews expected on Tuesday 28 January.
We reserve the right to bring forward the closing date if necessary. Therefore, if you are interested in this role, please submit your application as early as possible.
NO AGENCIES PLEASE.
Please note that you will need to have the right to work in the UK before starting work for us and we will check this. This role is also subject to a satisfactory DBS check.
How to apply
Please see the job description on our website for more information on the role. If you would like to discuss the role before applying, please contact recruitment@cysticfibrosis.org.uk.
To apply, please select 'Apply Now' and complete our application form and equal opportunities form on our website.
The Cystic Fibrosis Trust aims to be an inclusive workplace where everyone belongs, can be themselves and achieve their full potential. We want to attract, develop, and retain staff with different backgrounds, experiences and perspectives; particularly people who have cystic fibrosis; people who identify as being from an ethnic minority group, as LGBTQ+ and people with disabilities.
It is our policy not to discriminate against any person because of their age, gender reassignment, being married or in a civil partnership, being pregnant or on maternity leave, disability (physical and mental), race including colour, nationality, ethnic or national origin, religion or belief (including lack of belief), sex, sexual orientation or union membership.
Closing date for completed applications is 9am on Monday 20 January.
Interviews expected on Tuesday 28 January.
We reserve the right to bring forward the closing date if necessary…
